About Life With Down’s Syndrome – Amanda “How I could put this? People with Down’s are lucky because they are not alone. There are lots of others with Down’s and lots of families and groups who love them, and the…
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Q 11: The North Side of Down – Chapter 10
Posted in The North Side of Down Tagged with: court proceedings, Down syndrome support groups, guardianship, Jenny Hatch, legal responsibility, self-awareness
Q 10: The North Side of Down – Chapter 9
In Amanda’s section of this chapter she talks about fear and how Nancy helped her overcome it. Is there something your loved one is or has been afraid of? How have you worked to assuage those fears? “The fact that…
Q9: The North Side of Down – Chapter 8
Amanda’s section in this chapter is called ‘About My Dreams.’ In it she shares her bucket list and a great quote: “Life is about special moments.” Does your loved one have a bucket list? Tell us about a special moment…
Q8: The North Side of Down – Chapter 7
This chapter describes the frustration and pain that comes from a series of misdiagnosis and failed doctor visits. As a caregiver, have you experienced anything like this? Do you have access to specialists in your area? As her father’s health…
Posted in The North Side of Down Tagged with: access to care, guardianship, legal responsibility, letter of intent, medical care, planning
Q7: The North Side of Down – Chapter 6
Amanda describes how she takes care of her father in her mother’s absence. One of the things that people say about people with Down syndrome is that they are very empathetic. While I’m normally not a proponent of generalizations about…
Posted in The North Side of Down Tagged with: autonomy, decisions, dignity of risk, empathy, exercise, over-protection, physical activity, weight
Q6: The North Side of Down – Chapter 5
Nancy talks about having to step in after her mother’s death. She says that she doesn’t resent her siblings, but readers may doubt that based on what she writes. Have you ever felt resentment about your responsibilities as a caregiver?…
Posted in The North Side of Down Tagged with: aging, beliefs, caregiving, heaven, religion, resentment, responsibility
Q5: The North Side of Down – Chapter 4
In this chapter Nancy talks about going to a place that offers the family a sense of normalcy. How important is routine to your loved one? The sisters talk about the animals in their lives. Does your loved one have…
Q4: The North Side of Down – Chapter 3
Amanda believes that she talks to the dead at night. Does your loved one have unorthodox beliefs or habits that you are not sure how to explain to others? When the girls’ mother passes away, Amanda’s life if changed significantly.…
Q3: The North Side of Down – Chapter 2
Grizzly Adams Amanda and Nancy share memories of watching television together. Most people I know who have Down syndrome have great imaginations and connect to fictional characters they watch on TV. Does your loved one have a favorite show? How…
Posted in The North Side of Down Tagged with: family influence, fictional characters, politics, television
Q2: The North Side of Down – Chapter 1
Amanda talks about her boyfriends Red and Todd. How did you feel about her descriptions of her relationships? What was your reaction to Nancy’s story about how their father decided to have Amanda’s tubes tied? “Her social life ended…
Posted in The North Side of Down Tagged with: choice, disability services, family, language, medical care, romantic relationships
