““Will Thomas be giving up his parental rights?” She’s quiet for a moment. “I think it’s best, Alicia, don’t you?”” p. 259 This seems like a complicated legal issue. Assuming Margaret has guardianship over Thomas, does that give her the…
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Q28: Just Like Other Daughters
“I take along my guardianship papers for good measure.” P. 190 The one thing that I notice got almost no attention in this story is the part that guardianship would play if this story were true. Many people believe that…
Q13: Writing With Grace
The story Grace is writing focuses on an imaginary cross between herself and Cinderella. In it, Cinderella-Grace gets married, goes on her honeymoon, and has three children. Her writing seems to show how she wishes her life could be. When…
Posted in Writing With Grace Tagged with: birth control, guardianship, medical, medical care, obstetrics, self-advocacy
Q 11: The North Side of Down – Chapter 10
About Life With Down’s Syndrome – Amanda “How I could put this? People with Down’s are lucky because they are not alone. There are lots of others with Down’s and lots of families and groups who love them, and the…
Posted in The North Side of Down Tagged with: court proceedings, Down syndrome support groups, guardianship, Jenny Hatch, legal responsibility, self-awareness
Q 10: The North Side of Down – Chapter 9
In Amanda’s section of this chapter she talks about fear and how Nancy helped her overcome it. Is there something your loved one is or has been afraid of? How have you worked to assuage those fears? “The fact that…
Q9: The North Side of Down – Chapter 8
Amanda’s section in this chapter is called ‘About My Dreams.’ In it she shares her bucket list and a great quote: “Life is about special moments.” Does your loved one have a bucket list? Tell us about a special moment…
Q8: The North Side of Down – Chapter 7
This chapter describes the frustration and pain that comes from a series of misdiagnosis and failed doctor visits. As a caregiver, have you experienced anything like this? Do you have access to specialists in your area? As her father’s health…
Posted in The North Side of Down Tagged with: access to care, guardianship, legal responsibility, letter of intent, medical care, planning
Q20: Loving Andrew – Chapter 18
Andy’s college classes required that he navigate the city’s public transportation. Has your son/daughter surprised you by accomplishing something you never expected? How do you handle your anxiety about letting him/her try new things- especially if they could be dangerous?…
