Part Six: A Big News “My Real Truth I don’t know how to describe me as a real person Sometimes I can’t even control my hot anger Like a volcano’s magma fire anger There is something more about my…
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Q7: Writing With Grace
“”My grandfather,” she says, her voice low. He said Down, right to my face! Jeez! …Anger floods out from her, washing over the table, her notebook, me… I hate that word.” P.33 …David’s father, he told David to put Grace…
Q5: Writing With Grace
“Reluctantly, we squeeze into the elevator with the last stragglers, one of them a young man with Down syndrome. Grace glances at him then up at me, “Cool,” she says.” P. 24 Brief encounters like this happen frequently in…
Q 11: The North Side of Down – Chapter 10
About Life With Down’s Syndrome – Amanda “How I could put this? People with Down’s are lucky because they are not alone. There are lots of others with Down’s and lots of families and groups who love them, and the…
Posted in The North Side of Down Tagged with: court proceedings, Down syndrome support groups, guardianship, Jenny Hatch, legal responsibility, self-awareness
Q28: Loving Andrew – Epilogue
John and Lisa talk about what it was like for them growing up with Andy. For the most part, they seem to have “typical” sibling relationships. How did you react to the memories they shared? “Andrew was aware of his…
Q24: Life With Charley – Da Weal Santa
Some people call it learned helplessness – asking for help with things they are completely capable of doing. Some adults who have Down syndrome have learned to manipulate the unsuspecting. One of the girls in the church, Alyx, comes over…
Q19: Life With Charley – Pwomp and Circumstance
Romantic relationships can be difficult, for parents. Unfortunately, the object of your affection doesn’t always love you back, as Charley found out. “Jamie got boyfwent,” he announced one day while watching a movie. “Dat guy cherk.” Welcome to the world…
Q32: Adventures in the Mainstream
Q 32) “Almost exactly a year ago I got a call from a producer at Edge Media, a video production company based in Atlanta. Edge had been commissioned by the publishers Holt, Rinehart, and Winston to produce a series of…
Q25: Adventures in the Mainstream
Q 25) “So we decided that it was time for Ned to confront the reason he needs such special instruction. We decided to tell him he has a disability, and try to do it as simply and straightforwardly as…
Q20: Adventures in the Mainstream
Q 20) “The room was full of people with disabilities, almost all adults, and their parents. I’d seen it before a dozen times, but this time it was impossible for me not to compare the assembly with the people on…
