John and Lisa talk about what it was like for them growing up with Andy. For the most part, they seem to have “typical” sibling relationships.
How did you react to the memories they shared?
“Andrew was aware of his handicap, but we never knew to what extent people’s reactions bothered him. Many years later, he told us he disliked being called retarded.” P. 288
Many people who have Down syndrome have lower expressive language skills. They understand more than they are able to say.
Has your son/daughter ever surprised you with a revelation like this?
In the family discussion about Andrew’s hairstyles, you can really see his independence and sense of style – despite the family wishes.
Does your son/daughter make choices that you don’t agree with? How do you handle it?
Wyllie asks:
“Are we pushing too hard as we urge our children to reach for the stars yet impose limits on their achievements? To what extent should we change the rules or expect others to accommodate the handicapped so that they can fit within the guidelines created by society?” P 289
How would you respond?
In the final pages, Wyllie reflects on what Andrew taught his family and others.
How would you describe what your son/daughter has taught you?
If you had the chance, what would you like to say to Romy Wyllie?
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