Uninterrupted Joy: My Journey Through Infertility, Pregnancy, and Special Needs

Christi Caldwell

Uninterrupted Joy
Editions:Kindle: $ 2.99
Pages: 114

The following journey was never intended for publication. It was written from a mother, to her unborn child. The words detailed her struggle through infertility and the joy of finally being pregnant. A stunning revelation at her son's birth opened a world of both fear and discovery. This is the story of one mother's love and hope and... her quest for uninterrupted joy.

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Reviews:Ktine on Amazon wrote:

So many thing we’re just so right. She was able to put into words what I’ve known for the past 25 years. Having a loved one with Down Syndrome is the most the beautiful thing in life. There are hard times, especially In the beginning. But the way she is able to go through it minute by minute almost makes you feel you right there and not alone.

Patricia on Goodreads wrote:

I have only the deepest admiration for someone who can go ahead and share something so intensely personal and poignant as a difficult pregnancy. This book chronicles a personal journey, and documents a deep and abiding love between a man and a woman, of parents for an as-yet unborn child, and a faith in a compassionate God.
I recommend it to anyone struggling to get through a "rest in bed" pregnancy. it may give you strength to face time. It will certainly show you how one family coped. And succeeded.


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Unexpected: Parenting, Prenatal Testing, and Down Syndrome

Alison Piepmeier

Unexpected
Editions:Kindle: $ 25.65Paperback: $ 27.00
ISBN: 1479879959
Pages: 200
Hardcover: $ 89.00
ISBN: 1479816639
Pages: 200

What prenatal tests and down syndrome reveal about our reproductive choices

When Alison Piepmeier―scholar of feminism and disability studies, and mother of Maybelle, an eight-year-old girl with Down syndrome―died of cancer in August 2016, she left behind an important unfinished manuscript about motherhood, prenatal testing, and disability. In Unexpected, George Estreich and Rachel Adams pick up where she left off, honoring the important research of their friend and colleague, as well as adding new perspectives to her work.

Based on interviews with parents of children with Down syndrome, as well as women who terminated their pregnancies because their fetus was identified as having the condition, Unexpected paints an intimate, nuanced picture of reproductive choice in today’s world. Piepmeier takes us inside her own daughter’s life, showing how Down syndrome is misunderstood, stigmatized, and condemned, particularly in the context of prenatal testing.

At a time when medical technology is rapidly advancing, Unexpected provides a much-needed perspective on our complex, and frequently troubling, understanding of Down syndrome.

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Tuesday’s Child

Kathy Evans

Tuesdays Child
Editions:Paperback: $ 22.00
ISBN: 0717146227
Pages: 232

This beautifully written memoir is a compelling mix of heartfelt personal story and insightful journalism. Tuesday's Child highlights society's attitudes to difference, but more importantly the defining moment that was to reshape a family's life. Heart-warming and thought-provoking.

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Reviews:Inge Hulsker on Goodreads wrote:

A disappointing book. I expected a story about the family, including the child with Down's Syndrome. But it was nothing but the mother feeling sad and angry and complaining. She complains about every reaction anyone had, no one could do it right. There is much focus on the downsides and all the things that are different for Caoimhe,

I would have liked to read about the daily business of the family, including the 2 sisters. But we stayed mostly in the mother's head.

Joy Norman on Goodreads wrote:

The author has the ability to see the differing attitudes and effect it has on others lives. It was sad to hear that Caiomhe' diagnosis and treatment was often very negative by the medical field whom we think would support and be encourage the family. I found the book became repetitive and for me it lost some of the impact.


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Tim Defines and Defies Down Syndrome

Winnie Walsh

Tim Defines and Defies Down Syndrome
Editions:Paperback: $ 16.95
ISBN: 1608131947
Pages: 93

Showered with unconditional love by the Walsh family from the moment of his birth, Tim slowly developed into the fine young adult he is today. From the Early Intervention Program among infants his own age (one to three) he learned how to roll over on his stomach, crawl, stand, walk, and climb stairs one leg at a time. These things occurred normally in my four other children. In Project HELPS (Help Educate People who are Special) (three to five years) he learned social and play skills. In l975 when Tim arrived, his older siblings spanned the ages six, Donald Jr., to thirteen, Paul. Tim fortunately had wonderful role models early on. His brothers and sister interacted with him by incorporating the skills and lessons in these early sessions in playtime with him. Occasionally setbacks occurred, but Tim focused a great deal on the behavior of his brothers and sister and imitated it as he grew. Both my husband, Donald, and I set high standards for the entire Walsh bunch, and as their mother I am indeed proud of each and every one of them.

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Three Fields (brothers)

Anderson Burke

THREE FIELDS
Editions:Kindle: $ 2.99
Pages: 60

In 1959 Eddie Burke was born with Down syndrome. Medical professionals advised placing Eddie in a State institution. Forty-six years later, the eldest Burke brother discovers the journals of his recently deceased mother. These journals document the pain of giving up her third son and the effect this had on the family. THREE FIELDS (brothers) is an American story of loss and redemption.

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This Little Light of Mine: A Woman With Down Syndrome Shines Brightly In The World

Rosemary Heddens

This Little Light of Mine
Editions:Kindle: $ 3.99Hardcover: $ 33.88
ISBN: 1449760899
Pages: 194
Paperback: $ 17.99
ISBN: 1449760902
Pages: 194

Born in 1975, Kirstin Heddens entered a world where parents were being encouraged to place children with Down syndrome in institutions. But that world was beginning to change, with deinstitutionalization movements and the passage of laws requiring public education for all students. Able to grow up at home with her family, Kirstin enjoyed a typical childhood, attended public school with her peers, and went on to seek her own version of the American dream. For her family, it meant being introduced to a whole new world, the world of those with developmental challenges. For her mother, Rosemary, that resulted in the pursuit of a career in special education, which has filled her life with joy for nearly thirty years. For her father, Craig, it meant being involved in Special Olympics and later becoming the sponsor of a self-advocacy group as well as being his daughter's strongest supporter and advocate. Together as a family, they have faced the challenges presented to them with love and determination. Rosemary tells their story in a warm, compassionate, and often humorous way. She presents not only the challenges faced by this special group of individuals as they pursue their dreams, but also the gifts and talents they have to share with the world.

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Reviews:DB on Amazon wrote:

So much beneficial information and such positive stories of a family's journey of living a grand life with Down syndrome. I only hope my own daughter is blessed to enjoy such an awesome adulthood like Kristin. I highly recommend this book, especially to families who has a young loved one with Down syndrome.

Vikki on Amazon wrote:

Very inspiring and educational! A must read for any parent that may have a child with Down syndrome. This story is filled with helpful suggestions on available programs and potential education ideas for your child. It was witty and intelligent. I loved it!


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This Life I Live: One Man’s Extraordinary, Ordinary Life and the Woman Who Changed It Forever

Rory Feek

This Life I Live
Editions:Kindle: $ 12.99Audiobook: $ 20.96Paperback: $ 5.20
ISBN: 0785216820
Pages: 272
Hardcover: $ 15.47
ISBN: 0718090195
Pages: 272

Her story. His story. The love story of Joey and Rory.

By inviting so many into the final months of Joey’s life as she battled cancer, Joey and Rory Feek captured hearts around the world with how they handled the diagnosis; the inspiring, simple way they chose to live; and how they loved each other every step of the way. But there is far more to the story.

“My life is very ordinary,” says Rory. “On the surface, it is not very special. If you looked at it, day to day, it wouldn’t seem like much. But when you look at it in a bigger context—as part of a larger story—you start to see the magic that is on the pages of the book that is my life. And the more you look, the more you see. Or, at least, I do.”

In this vulnerable book, he takes us for the first time into his own challenging life story and what it was like growing up in rural America with little money and even less family stability.

This is the story of a man searching for meaning and security in a world that offered neither. And it’s the story of a man who finally gives it all to a power higher than himself and soon meets a young woman who will change his heart forever.

In This Life I Live, Rory Feek helps us not only to connect more fully to his and Joey’s story but also to our own journeys. He shows what can happen when we are fully open in life’s key moments, whether when meeting our life companion or tackling an unexpected tragedy. He also gives never-before-revealed details on their life together and what he calls “the long goodbye,” the blessing of being able to know that life is going to end and taking advantage of it. Rory shows how we are all actually there already and how we can learn to live that way every day.

A gifted man from nowhere and everywhere in search of something to believe in. A young woman from the Midwest with an angelic voice and deep roots that just needed a place to be planted. This is their story. Two hearts that found each other and touched millions of other hearts along the way.

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Reviews:Eric Wilson on Amazon wrote:

My wife is the one who introduced me to the Rory+Joey story, keeping me updated on the couple's journey through marriage, stardom, parenthood, cancer, and an untimely death. We watched DVDs, listened to CDs, and rode the emotional rollercoaster. All along, though, I had that sneaking male suspicion that Rory was just too calm, too perfect, that we weren't getting the whole story. In fact, I was even hesitant to read this book after my wife finished it, afraid that it would be too simple and sweet. I wanted something deeper and more raw.

Thankfully, Rory does give us a deeper look into his past and his own journey. By doing so, he won me over, finding camaraderie with another man and husband who has made mistakes but is also committed to his wife, family, and God. Rory shares some of his own mistakes, doesn't make excuses, and shows grace and forgiveness for others in his life--such as his mother, his ex-wife (before Joey), and so on. I would've loved to hear more about his daughters, since they've clearly had a lot to deal with in this whole process too, but that's their own story to tell if and when they choose.

This Life I Live is an extraordinary story, and this couple's example is one that many have been encouraged and challenged by. I'm glad my wife brought me along for the ride, and Rory's honesty and candor only makes me more appreciative of God's working in our lives.

Laura Rash on Goodreads wrote:

With short chapters this book just flowed. When it seemed like it was going to get too emotional it was the end of the chapter & a different part of the story began. One of the most raw stories I've ever read of faith & true love. Inspiring & beautiful.


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This Is What Perfect Looks Like

Heather H House 

This Is What Perfect Looks Like
Editions:Kindle: $ 8.00Paperback: $ 18.00
ISBN: 0998096431
Pages: 396

From the minute she first laid eyes on her baby girl, Heather House knew what the doctors would not immediately tell her: one of her newborn twins had Down syndrome. In this thoughtfully candid memoir, House takes an unflinching look at the sometimes painful, often joy-filled, always humbling experience of being the mother of a child who has special needs. Genuine, raw, funny and engaging, This Is What Perfect Looks is as endearing as it is unsentimental. Initially disoriented by the change in her identity from “Spectacularly Competent Mom” to “Mother of a Child Who Has Special Needs,” it is the hard-won love for her daughter Fern that serves as her inner compass and ultimately leads House to recognize that she has everything she has ever dreamed of – and a little extra, too.

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Reviews:aps on Amazon wrote:

An emotionally raw and courageous account of a life changing experience... in a super quick and compelling read. A look into the confusing journey the author traveled (and perhaps, is still traveling) as a mother. The writing is heartfelt and Ms. House doesn't hold back. With amazing levity, the book touches on immense subjects like grief, love, guilt, changing family dynamics, depression, the Modern Medicine Machine, belief in God, and also how to navigate grocery shopping when emotions are high and patience is low; something most anyone can relate to! I read this book in one sitting and found myself wanting to know more - dig deeper into some of the many challenges and realizations Ms. House explores with grace that comes from vulnerability and perspective. The book is also beautifully constructed with relevant photographs to set the tone at the start of each chapter.

Kayleigh on Goodreads wrote:

This book was a raw look into the life of a parent who's child has Down Syndrome. It honestly looks at the struggle Heather felt in accepting that things don't always go the way you planned them and that parenting (to children both with and without special needs) is all about being flexible. Through the whole book, you could feel the love that Heather has for Fern, as well as her other children. It was a great, easy read.


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They’ll Remember Our Son

Ginger K. Nelson

They'll Remember Our Son
Editions:Kindle: $ 2.99Paperback: $ 7.99
ISBN: 1544715781
Pages: 144

When our third child was diagnosed with Down syndrome, we cried. Thirty-four years later, we exult in his many accomplishments and in his personality and love.

This book is the biography of Danny. It tells the story of all the people whose lives he has touched. It begins with his most exciting competition in the demanding sport of gymnastics — the 1987 International Special Olympics. It continues with the first day of his life, the first year, then it chronicles various types of events such as his adventures wearing a tuxedo. In each chapter, the reader learns that Danny teaches us all what is really important — living life and accepting whatever it sends us in a way that makes people remember him. Throughout the book, you will learn why Danny is a genuine hero.

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Reviews:Dan Thompson on Amazon wrote:

A very touching story of the life of Danny, who is born with Down Syndrome. Danny leads an amazing life, full of sports and people. Well worth the time to read.


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The Year My Son and I Were Born: A Story of Down Syndrome, Motherhood, and Self-Discovery

Kathryn Lynard Soper

The Year My Son and I Were Born
Editions:Kindle: $ 19.21Hardcover: $ 20.06
ISBN: 0762750618
Pages: 336
Paperback: $ 4.50
ISBN: 0762760346
Pages: 336
For most of her life, Kathryn Soper was like most people in one key respect: She hadn’t given any serious thought to the subject of disability. That all changed the day her son, Thomas, showed up with an extra chromosome.
With six other children at home, Soper was prepared for the challenges another newborn would bring. But after Thomas’s complicated birth, his diagnosis—Down syndrome—forced her to face her deepest fears and weaknesses, her ignorance and prejudice, and her limitations as a mother and as a human being. Her struggle, coupled with the demands of caring for a fragile baby and juggling her family’s needs, sparked the worst depression she’d experienced in decades.
In The Year My Son and I Were Born, Soper takes us along on her personal journey through Thomas’s tumultuous first year—as she strives to balance the loss of the child she thought she would have with loyalty for the baby she actually holds in her arms. Can she love Thomas for himself? Can she protect him from the world’s insensitivity—andfrom her own doubts?
Ultimately, Soper escaped her downward spiral of despair and emerged with newfound peace. Antidepressant therapy restored her equilibrium, and interactions with friends and family brought needed perspective. But the most profound change came through her growing relationship with Thomas. His radiant presence shone through her outer layers of self, where fear and guilt festered, and reached the center of her very being—where love, acceptance, and gratitude blossomed in abundance.
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Reviews: POV on Amazon wrote:

Coming on the heels of a world-wide media introduction to Alaska Governor Sarah Palin's baby, who has Down syndrome, Kathryn Lynard Soper's memoir should be on every public library's shelf. With some 5000 children born with DS each year in the U.S. alone, and a 90 percent abortion rate for those diagnosed prenatally, this is an important book. While offering hope and encouragement, Soper dispels some of the myths about DS, including the adage that special children are given to special people. She didn't feel chosen by a magic wand or divine intervention. DS is a random occurrence, about one in 800-1000 births. Soper's honesty about her initial feelings of disappointment, resentment, inadequacy, discomfort around people with disabilities, despair, even embarrassment, is commendable. Her words are a gift to anyone facing the fear and uncertainty that come with raising a child with special needs of any kind.

Soper's prose is compelling and endearing, but for me, the most poignant words in her story come from her husband, Reed. On the Mormon occasion called the Baby Blessing (baptism is at age eight), he holds his seventh child and recites blessings that sum up the family's acceptance, love, and dedication to Thomas. He blesses the baby for his unique mission here on earth; that of teaching them how to love each other. He asks that the family be able to bear any burdens placed on them by Thomas's health. He ends with, "And, Thomas, we say unto you, we say that any good thing denied you in this life will be given in the life to come."

I was left with the feeling that Thomas is in capable and nurturing hands.

Eliza on Goodreads wrote:

I polished this off in an afternoon. Opened my eyes and heart wider to the possibilities for growth through trials for all of us as humans, and to our capacity to love. Very tender, a little bleak at times, very hopeful at times, maybe a little too analytical/philosophical at times (pot -> kettle: black), and not sentimental. Recommended.

I also very much enjoyed Soper's essay compilations, "Gifts" and "The Mother in Me." (she was the editor and wrote I think one essay for each.)


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