Amanda’s section in this chapter is called ‘About My Dreams.’ In it she shares her bucket list and a great quote: “Life is about special moments.” Does your loved one have a bucket list? Tell us about a special moment…
Blog Archives
Q8: The North Side of Down – Chapter 7
This chapter describes the frustration and pain that comes from a series of misdiagnosis and failed doctor visits. As a caregiver, have you experienced anything like this? Do you have access to specialists in your area? As her father’s health…
Posted in The North Side of Down Tagged with: access to care, guardianship, legal responsibility, letter of intent, medical care, planning
Q28: Life With Charley – Unless You’ve Made Other Plans
One of the scariest things for parents of people who have Down syndrome, or any intellectual / developmental disability, is worrying about what will happen to our child if something happens to us. Sherry came face to face with this…
Q45: Adventures in the Mainstream
Q 45) Palmer’s last pages talk about the unending concern of parents: “The parents of kids with developmental disabilities can never put their full weight down, never completely relax and enjoy the ride where their offspring are concerned. That’s…
Q9: Adventures in the Mainstream
Q9) “Ned’s brother, Ira –three years older, college graduate–has already started having his own adventures. He’s played football with the Carlton College team in Germany, been an exchange student in Japan, and traveled with me on a production trip to…
Q2: Adventures in the Mainstream
Q2) In the first chapter, Palmer sets up the struggle he intends to show his readers: How parents of children who have Down syndrome think about the transition from child to adult. “Can a very verbal, very social young man…
