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Q9: The North Side of Down – Chapter 8

The North Side of Down: A True Story of Two Sisters

Amanda’s section in this chapter is called ‘About My Dreams.’ In it she shares her bucket list and a great quote: “Life is about special moments.” Does your loved one have a bucket list? Tell us about a special moment

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Q8: The North Side of Down – Chapter 7

The North Side of Down: A True Story of Two Sisters

This chapter describes the frustration and pain that comes from a series of misdiagnosis and failed doctor visits. As a caregiver, have you experienced anything like this? Do you have access to specialists in your area? As her father’s health

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Q7: The North Side of Down – Chapter 6

The North Side of Down: A True Story of Two Sisters

Amanda describes how she takes care of her father in her mother’s absence. One of the things that people say about people with Down syndrome is that they are very empathetic. While I’m normally not a proponent of generalizations about

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Q6: The North Side of Down – Chapter 5

The North Side of Down: A True Story of Two Sisters

Nancy talks about having to step in after her mother’s death. She says that she doesn’t resent her siblings, but readers may doubt that based on what she writes. Have you ever felt resentment about your responsibilities as a caregiver?

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Q5: The North Side of Down – Chapter 4

The North Side of Down: A True Story of Two Sisters

In this chapter Nancy talks about going to a place that offers the family a sense of normalcy. How important is routine to your loved one? The sisters talk about the animals in their lives. Does your loved one have

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Q4: The North Side of Down – Chapter 3

The North Side of Down: A True Story of Two Sisters

Amanda believes that she talks to the dead at night. Does your loved one have unorthodox beliefs or habits that you are not sure how to explain to others? When the girls’ mother passes away, Amanda’s life if changed significantly.

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Q3: The North Side of Down – Chapter 2

The North Side of Down: A True Story of Two Sisters

Grizzly Adams Amanda and Nancy share memories of watching television together. Most people I know who have Down syndrome have great imaginations and connect to fictional characters they watch on TV. Does your loved one have a favorite show? How

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Q2: The North Side of Down – Chapter 1

The North Side of Down: A True Story of Two Sisters

Amanda talks about her boyfriends Red and Todd.   How did you feel about her descriptions of her relationships? What was your reaction to Nancy’s story about how their father decided to have Amanda’s tubes tied? “Her social life ended

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Q1: North Side of Down – Acknowledgements

The North Side of Down: A True Story of Two Sisters

Nancy has a long list of people to thank and she shares with us specifics about what she appreciates the most about each one. Have you ever thought about who has helped you on your journey as caregiver? What are

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Q28: Loving Andrew – Epilogue

Loving Andrew: A Fifty-Two-Year Story of Down Syndrome

John and Lisa talk about what it was like for them growing up with Andy. For the most part, they seem to have “typical” sibling relationships. How did you react to the memories they shared? “Andrew was aware of his

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