Blog Archives

Q1: North Side of Down – Acknowledgements

The North Side of Down: A True Story of Two Sisters

Nancy has a long list of people to thank and she shares with us specifics about what she appreciates the most about each one. Have you ever thought about who has helped you on your journey as caregiver? What are

Posted in The North Side of Down Tagged with: , ,

Q28: Loving Andrew – Epilogue

Loving Andrew: A Fifty-Two-Year Story of Down Syndrome

John and Lisa talk about what it was like for them growing up with Andy. For the most part, they seem to have “typical” sibling relationships. How did you react to the memories they shared? “Andrew was aware of his

Posted in Loving Andrew Tagged with: , , ,

Q27: Loving Andrew – Chapter 25

Loving Andrew: A Fifty-Two-Year Story of Down Syndrome

This is an extremely difficult chapter to read. We’ve come to know Andrew through his mother’s written words and the story of his final hours is sure to bring tears to our hearts and eyes. What was your reaction to

Posted in Loving Andrew Tagged with: , ,

Q26: Loving Andrew – Chapter 24

Loving Andrew: A Fifty-Two-Year Story of Down Syndrome

This chapter covers Andrew’s move into a nursing home. The Lambs, the group home/farm community where he lived for decades, seemed to be a good placement for Andrew. How do you feel about these types of communities? When he could

Posted in Loving Andrew Tagged with: , , , ,

Q25: Loving Andrew – Chapter 23

Loving Andrew: A Fifty-Two-Year Story of Down Syndrome

Wyllie goes into detail about the different doctors, diagnoses, and medications prescribed in an attempt to understand what was going on with Andrew’s mental health. Have you ever had trouble getting appropriate medical care for your son/daughter? Andrew’s long-time girlfriend

Posted in Loving Andrew Tagged with: , , , ,

Q24: Loving Andrew – Chapter 22

Loving Andrew: A Fifty-Two-Year Story of Down Syndrome

When Andrew’s mental health starts to falter, his mother tries to think of reasons why he could be worried or frustrated. She writes about how the family had always encouraged Andrew to “lead as normal a life as possible.” Do

Posted in Loving Andrew Tagged with:

Q23: Loving Andrew – Chapter 21

Loving Andrew: A Fifty-Two-Year Story of Down Syndrome

Wyllie’s discussion about how Andrew didn’t have friendships in school is difficult to read. Is her description familiar? Did your child attend his/her prom? The subject of reproductive health and the rights of people who have Down syndrome presents difficult

Posted in Loving Andrew Tagged with: ,

Q22: Loving Andrew – Chapter 20

Loving Andrew: A Fifty-Two-Year Story of Down Syndrome

Andrew’s co-workers describe him as having moods when he is “obnoxious.” “If he doesn’t want to listen, he won’t listen. The only one he’ll listen to is Pete because Pete’s his supervisor right now. Andrew is like my six-year-old kid;

Posted in Loving Andrew Tagged with: , ,

Q21: Loving Andrew – Chapter 19

Loving Andrew: A Fifty-Two-Year Story of Down Syndrome

“Watching children leave the nest is difficult for any parent, but letting go of a child with a developmental disability is an especially traumatic experience because we feel so responsible for their well-being.” P. 213 Do you agree with this

Posted in Loving Andrew Tagged with: ,

Q20: Loving Andrew – Chapter 18

Loving Andrew: A Fifty-Two-Year Story of Down Syndrome

Andy’s college classes required that he navigate the city’s public transportation. Has your son/daughter surprised you by accomplishing something you never expected? How do you handle your anxiety about letting him/her try new things- especially if they could be dangerous?

Posted in Loving Andrew Tagged with: , ,