One of the great things about Charley is his ability, even as an adult, to play like a kid.
Sometimes I forget he’s an adult. This person who is part man, part boy. This person who sports a beard and masquerades as a blue ghost. This person who still knows how to play and reminds us that the reason we get out of bed in the morning is to spend another day with him. P. 399
Does your son/daughter seem to go from adult to child in the blink of an eye?
This chapter is about the importance of routine for our loved ones.
If you know anything at all about people with Down syndrome, it’s that they thrive on routine. Interrupt that routine, and what you have on your hands is M-A-L-F-U-N-C-T-I-O-N. p. 392
“What dat?” Charley points to the pills.
Brad says, “Son, they’ve changed the color. The pills are green now.”
“No Daddy. Where my white pills?”
“We can’t get them anymore—the manufacturer stopped making them white.”
“No Daddy, wong one.”
“I promise, Son, it’s the same medicine, just a different color.”
“No not, Dad!” He points to the medicine bottle. “Give me my WHITE pills.” P. 403
Have you ever had trouble changing your child’s routine?