The story of how one family learned to embrace the unexpected birth of a daughter with Down syndrome. From the grief associated with an unexpected event to the celebration of life their daughter has taught them and brings to them every day. This book describes the ten stages the family went through, including grief, research, incorporation, inclusion, and finally planning in their journey to celebrating the magic of Down syndrome.
Mardra on Goodreads wrote:
This book was just what I needed to read! You see, I too am a parent of a now 20 year old daughter with Down Syndrome. Up until reading this book, I felt like I was on an island because no other book has given a glimpse into real life, the struggles, stubbornness, the angry outbursts and meltdowns (that only seem happen in public!!) that can come about with a teenage (or older) hormonal just-like-her-older-sisters late teen with DS. And just like you, although life can be a challenge and a struggle at times, I wouldn't change my daughter for anything...she's perfect just how God made her and I couldn't love her more!! Thank you for writing this book. Our daughters are a lot alike.
Margaret Bender took on the difficult challenge to put into words the day to day struggles and the “big picture” fear that parents of children with special needs face. From Grief to Celebration is a memoir/autobiography that reads more like a friendly “how-to” manual of parenting a child with Down syndrome. However, Bender achieves this without being preachy or angry. No, instead she gives the readers small bites of advocacy and advice on raising awareness in each community.
Parents of young children with Down syndrome will most benefit from Bender’s accessible story of her family’s journey. This book is short (90 pages) and is broken into logical, easy to digest sections. Her honest appraisal of Alex’s strengths and quirks, and her hopes for Alex’s future are the threads that all weave together to form their journey to Celebration.
As a follower of Bender’s blog http://www.theextraordinarygirl.com, so I appreciate the backstory, now that Alex has left home to attend a transitional college.
Above all, Bender’s book shows the world that people with Down syndrome are as unique from each other as we all are, but when it comes to following your dreams and wanting a full life, well there we are all more same than different.