THEN Follow along with the author as she learns, at only four months pregnant, that the baby she is carrying has severe heart defects and Down syndrome. Step with her into the delivery room, the hospital rooms, the operating rooms, and into her heart; into her life. Watch as her child touches the lives of everyone around her. Read along with Douglas King, MD, a prominent children's cardiologist, as he discusses the intricacies of Jenessa's heart defects and surgeries. Enter into the neonatal world of care with Georgia Ditzenberger, a dedicated neonatal nurse practitioner, as she articulates Jenessa's earliest days. Journey with the mother through the first three years of Jenessa's miraculous life. NOW The original Jenessa's Journey has been edited and added to, bringing you forward into Jenessa's family life eleven years (and four new siblings) later. Meet her sister and two brothers, who also have Down syndrome, and her sister from West Africa. Hear from her older brother. Listen as her father shares his biggest pet peeve. Learn about homeschooling children with special needs. Watch as God weaves together a family full of love, joy, and abounding strength. Jenessa's Journey, Then and Now, is a valuable tool not only for parents, friends, and families of children with disabilities, but for doctors, nurses, and students as well.
Dia V. Norris on Amazon wrote:
Captivating story of this family's journey with their special needs baby and how it changed them for the better, even leading them to adopt three with special needs. Really like the practical ways given at the end on ways anyone can help make a difference. Also helpful in knowing how to view them and others with special needs kids as normal families striving to be good parents like everyone else.
What a gift - thanks so much to Debbie for sharing this beautiful story and her beautiful family. GBAM!
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